As with any medical condition, we do rely on hearing the experiences of patients and family members in order to develop new services which better cater to the needs of those affected. If you have any suggestions for improvement to the website or new sections which you think we should add, please do contact us.

Patiënten, familie, vrienden en onderzoekers van het Leids Universitair Medisch Centrum, gaan hardlopen om meer aandacht te vragen voor CADASIL. Vul de enquête van Platform CADASIL in.

Friday, February 4, 2011. My dad used to sing this song ALL the time. Tuesday, December 28, 2010. We need a Christmas Break. The last few days, ever since Christmas really, my mother has had a bad migraine. Then she caught the flu from me. It is day 4 of her migraine and while i am starting to feel better, and her flu symptoms where actually not that bad, her headache has gotten worse. Friday, December 10, 2010.

These are families who has shared their experiences with how they deal with CADASIL. Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL.

Le temps semble vouloir nous jouer de mauvais tours,. Il y aura bien quelques rayons de soleil et quelques degrés de plus. Demain entre 14h et 18h. Et même sil pleut ou neige,. Le FESTIVAL du 13AIME aura lieu. Vous retrouvez alors les ateliers à lintérieur du centre danimation Daviel. Et le grand spectacle de cirque, quelque peu modifié,. Y aura également lieu dans laprès-midi.